Monday, April 15, 2013

It has been a while....but here is an update

It has been a rough few weeks.  I have had seizures on a consistent basis.  On average one every other day, but sometimes it has been one a day or sometimes two a day.  It doesn’t hurt, and I can typically feel them coming, it is just so darn frustrating, especially when it is multiple in one day.  I really can’t figure out why they have increased so much.  I am not doing anything different and most of the time I can’t associate them with stress.  Maybe God is trying to tell me to slow it down some.  I know I haven’t written lately, but for some reason I keep getting busier and busier.  Also, Kara has been doing quite a few races over the last few months.  I have been so proud of her, she is accomplishing a lot that most of us would not even attempt.  She ran a Marathon in January in Charleston SC, she has run a few 5Ks over the last few months, but the proudest I have been of her is the fact that she did two half marathons in two days.  After the first one in Greensboro on a Saturday, we went to Raleigh that afternoon and spent the night due to the Raleigh Rocks ½ was starting at 7:30 Sunday morning.  That night she was tired and achy because of the run that morning and she was scared that she might not finish.  I told her that she will feel better in the morning and will do fine.  Well, not only did she do fine but she set a new Personal Record for a 1/2 marathon (13.1 miles to us that do not run) and came in 3rd place for her age group.  When she crossed the finish line, she hugged me and said that she does this because she believes that every mile she runs will in turn add another year to my life.  So as many miles as she does run, I will outlive pretty much all of you combined. 
This weekend is going to be an exciting weekend for my family.  We will be attending for the first time the Angels among Us walk/run.  This is put on every year to raise money for the Preston R Tisch Brain Tumor Clinic at Duke Hospital where I go for treatment.  What is especially good news is that the money that is raised goes to research at the facility to find new ways to treat Brain Tumors.  So basically the money goes to find new ways to stop or eliminate tumors such as the one I have.  They will have a group of survivors (Ones that have not yet died from a brain tumor ….such as me) that will be recognized.  Also, there will be some researchers that will speak and update everyone on the upcoming treatments that they and others are working on to fight the battle against brain tumors.  I am so happy that I will have a fellow survivor Jennifer Hutchens to walk with me.  She was diagnosed last year with a Brain tumor and had it removed.  This was our first year raising money for the event and I set a goal of $10,000 dollars.  Right now we have just over $3000.00 I would love for you to join with me and fight my killer by giving money to research.  It is a tax-deductible contribution and you will receive an email you can use when you file your taxes next year.  The deadline for online contributions I believe is by the end of day Wednesday.  If you can only give $5.00 then please just do that.  If you are blessed enough to be able to give $5000.00 then I pray you will do that.  You would not be helping just me, and I would not be asking for you to do it if it were just me.  You will be helping thousands of people each year that are diagnosed with this deadly killer. 
You can donate by clicking on this link:
Thank you! 

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